Charlie's story isn't over
Our beautiful Charlie should have had the chance to grow up.
Instead, we were forced to say goodbye to our baby boy before his first birthday.
Charlie’s short life brought global attention to a cruel disease most people had never even heard of.
Today, his devastating story continues in Emily, Rachael and JoJo. Three young adults fighting the same diagnosis as Charlie’s.
And their families’ clocks are still ticking.
The same disease. The same fight.
Charlie was diagnosed with RRM2B Mitochondrial Disease as a baby. Emily, Rachael and JoJo were much older. Rachael was 16, JoJo was 11 and Emily was just eight years old when their families finally got answers.
They were told,
“There’s no cure”
“Go and enjoy the time you may have left”
Today, while most people their age are building careers, relationships and independence, Emily, Rachael and JoJo are living with this progressive disease that takes more from them every year.
And while the disease keeps getting worse, their families are fighting desperately to hold onto more time together while they still can.
Hearing
Strength
Independence
Time
Hearing
Strength
Independence
Time
Research is moving forward for RRM2B mitochondrial disease
Developing gene therapy research is creating a potential treatment pathway for people diagnosed with RRM2B mitochondrial disease.
Not false hope. Not empty promises.
Real scientific progress that families can’t afford to miss.
For the first time, this research is moving beyond theory and into real scientific development. Thanks to fundraising already completed, important early research work has already begun.
The next stage now depends on urgent funding.
All donations made to the Charlie Gard Foundation will help fund the next phase of pre-clinical RRM2B gene therapy research for Emily, JoJo and Rachel.
This research could also help drive future treatment progress for other families affected by this devastating disease around the world.
For families who have spent years being told nothing more can be done, this research represents something they’ve never truly had before.
The possibility that there could finally be a treatment specifically developed for people living with RRM2B mitochondrial disease.
The possibility of more time.
And your donation could help bring that possibility closer.
Charlie's story is helping drive a new future for families living with RRM2B mitochondrial disease
Charlie’s precious life put RRM2B mitochondrial disease in front of the world.
Today, that awareness is helping drive urgently needed research that could change what comes next for families still fighting this devastating disease.
The ‘More Tomorrows’ campaign is about creating more time for families living with RRM2B mitochondrial disease.
For Emily, Rachael and JoJo, ‘More Tomorrows’ could mean more birthdays, more memories and more chances to simply live the life they deserve.
Please give generously today to help continue Charlie’s fight before more time is lost.
